The desperate parents of a hole-in-the-heart baby will find out this week if doctors will give the family the go-ahead for a life-extending operation.
Gina and David Scanlan’s 16-week-old daughter, Willow, was born with incurable Edwards’ syndrome, also known as Trisomy 18, and a serious heart defect.
But doctors have informed the couple that it is not “usual clinical practice” for medical teams in the UK to operate on children with the condition.
A crunch decision meeting has now been set for tomorrow and cardiologists in Glasgow’s children’s hospital will meet to discuss whether or not to offer Willow life-extending surgery.
Last week, the Fyvie family took Willow to Dundee to get an updated echocardiogram of the vital organ ahead of the meeting and also sent a copy of it to cardiac doctors in America who specialise in the rare genetic condition.
Mr Scanlan said they had just received confirmation from one cardiac paediatrician based in Omaha who had reviewed his daughter’s results to say they would be willing to carry out the repair operation in the next two months.
Relatives of the Scanlans have launched an online campaign, #savewillow, to raise money.
Donations can be made at justgiving.com/crowdfunding/janet-bonar-2