A MUM has left her North-east home in “desperation” to seek lifesaving medical treatment for her daughter who is unable to breathe or eat unaided.
Elysha Robertson and her mother Grace, from Fraserburgh, are currently staying at Sheffield Children’s Hospital.
Grace decided to move with Elysha, who has been diagnosed with Brown-Vialetto-Van Laere syndrome, in a last-ditch attempt to secure medical treatment which she has been denied at Royal Aberdeen Children’s Hospital (RACH).
The health board will not provide 13-year-old Elysha with Intravenous Immunoglobulin Therapy (IVIG) – a treatment she previously had at Sheffield Children’s Hospital.
IVIG is used to treat disorders of the immune system and to boost immune response to serious illnesses.
Today, Grace said: “We are holding on to hope as it’s all we have.”
An NHS Grampian spokeswoman said: “The treatment plan developed for Elysha by NHS Grampian reflected considered clinical opinion.
“We had met with the family on a number of occasions and were willing to do so again.
“We are sorry to hear they felt they had no alternative but to seek care elsewhere.”